Do you know ANYBODY who has this disease??? Lilacspecs is trying to help a friend who has a friend with this disease..it is pretty awful…your lungs get little bleeders in them and can’t stop bleeding…get the picture…not a pretty one!

ANyway, Jo is trying to find other people who either have it or know something about it to try and get a Blog support system going for her friend.

If you do know anything about this disease or anyone who has it, please go to Jo’s Blog and let her know!